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https://www.launchgood.com/v4/campaign/a_camera_saved_my_life
“Whoever guides someone to goodness will have a reward like the one who did it.”
— Prophet Muhammad ﷺ
Impact: Etowah, TN
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This campaign will collect all funds raised by October 15, 2016 at 11:45 PM EDT
Retinoblastoma is a childhood eye cancer.
What would you do if you took a baby picture and saw a bright white glow?
What if your Pediatrician said, "Don't worry about it?"
Or your child's doctor said he's never given a diagnosis for Retinoblastoma?
After your child's eye is surgically removed, then what? Early detection and a dilated eye exam saved our child's vision and her life.
Willis Eye Oncology Service, Philadelphia PA. https://www.youtube.com/watch?v=dWYY_5iJqHc
My husband and I learned about Retinoblastoma (Rb) eye cancer when our daughter was 9 months old. Mom took a picture and saw a bright white glow in her eyes. Emergency surgery was scheduled to remove her eye because the tumors were growing and spreading. We returned to the hospital every 3 weeks for follow up care. Four years later, our child was diagnosed with hearing loss. Technology has advanced for early detection, families have more treatment options. Currently, there is no prevention and there is no cure.
Our family designed Rb Awareness Posters, for our daughter and children around the world.
More Doctors and Parents need to know, children under 5 years need to be dilated eye exams to detect Retinoblastoma. Rb is a rare childhood eye cancer. From the day of diagnosis, for the rest of a child's life they are at risk for:
Ø Undetected tumors spread to other parts of the body
Ø The possibility of developing second cancers exists.
Ø Surgical removal of one or both eyes, low vision, or monocular vision, requires a new eye, "called a prosthesis."
Ø Blindness and hearing loss
Nicolefranco.com/seeing-through-retinoblastoma-cancer-of-the-eye/
September is National Childhood Cancer Awareness Month. We are printing Rb Awareness posters to give to parents of children with Retinoblastoma, State Departments of Health (southeast region of U.S.), pediatricians, national cancer organizations, rural community health centers and schools. We will also print and distribute posters to international organizations and vision services agencies.
Donations help print, mail and translate this important message into Braille, Arabic, French, Spanish and other languages.
and mourn the children who have not survived.
THIS IS A PUBLIC SERVICE PROJECT - POSTERS ARE NOT FOR SALE
ACCO - American Childhood Cancer Organization Washington D.C.
Statement about the National Proclamation by President Obama.
Emily Taylor Snell, Project Coordinator, FAVI- Florida and Virgin Islands Deaf-Blind Collective
“In 2000, I saw a poster about Rb Awareness. As I learned more about Rb, I added information to our agency training resources for parents of young children. I met Zaakirah Nayyar at her middle school through my work. I was impressed by her natural creativity, intelligence and technical skills.“
Islamic Society of Tampa Bay Florida - The Red Crescent FREE Clinic
http://www.redcrescenttampa.org/
We especially want to thank Imam Abu Hassan Sultan (returned to Allah August 2016) and Masjid Al-Jami Board Members for supporting the Family Resource Center collaboration with The Tampa Children's Hospital for Back-to-School, FREE Health Screenings, Vision and Hearing tests for Muslim children.
Zaakirah Nayyar Demba. Rb Survivor, Photographer, Social Media Manager
"At nine months old, I was diagnosed with non-hereditary sporadic bilateral retinoblastoma. My right eye was surgically removed, since then I have had monocular vision. I experienced hearing loss after radiation therapy, cancer treatment. Many young children experience post-traumatic stress later in life, from having this surgical procedure at such a young age. It took a long time for me to feel good about being a Rb survivor and thinking about it as a positive thing because it's really difficult having hearing and vision loss from a rare eye cancer."'
http://www.sun-daughter.net/2016/04/guest-blogger-meet-our-sun-daughter.html
Abdul Haadee Muhammad, Husband and Father
"Jazak Allah khairun. You worked so hard for Zaakirah Nayyar to have the best Pediatric Oncologist, Timothy G. Murray, M.D. Miami FL." http://www.murraymd.com/doctors.html
Healthy Eyes Begin at Birth
Retinoblastoma is a rare Childhood EYE Cancer. Early Detection, and dilated EYE exams save lives and prevent blindness. Your donation helps us share this message with Parents of young children and Pediatricians around the world.
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'E' is for Empathy, eCards for children in the hospital
Original calligraphy designs, imprinted with motivational messages. Special orders accepted for Braille and language translations. Receive a special offer - use promo code ZNayyar99 @ http://www.yourtruegreetings.com
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Stickers: "Healthy Eyes" for eye care specialists
Rb Awareness messages pre-printed on stickers for children after dilated eye exams.
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"Mom Took My Picture" - posters
This September GIVE posters to children, Community Health Centers and Eye care specialists. Use Promo Code 99Nayyar07 @http://www.yourtruegreetings.com/calendars
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Publish the first Retinoblastoma Storybook
We are working to have the book project completed this fall with Braille print format. This is a story for parents and children ages 7 to 12. Mom & daughter write about a Muslim child's courage, living with eye cancer.
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Sponsors Needed
SUN-Daughter.net is growing an international audience. We need an awesome website, attractive, powerful and inviting for medical professionals to advertise new technologies and advanced cancer treatment options. We welcome ads for medical services, protective eyeglasses and sports eyewear for children and adults.
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Giving is better together! Your share could raise over 0.
https://www.launchgood.com/v4/campaign/a_camera_saved_my_life
“Whoever guides someone to goodness will have a reward like the one who did it.”
— Prophet Muhammad ﷺ
Dina tabbah
An Anonymous kind soul
An Anonymous kind soul
Nafee Rashid
Emily Taylor-Snell
Giving is better together! Your share could raise over 0.
https://www.launchgood.com/v4/campaign/a_camera_saved_my_life
“Whoever guides someone to goodness will have a reward like the one who did it.”
— Prophet Muhammad ﷺ
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Giving is better together! Your share could raise over 0.
https://www.launchgood.com/v4/campaign/a_camera_saved_my_life
“Whoever guides someone to goodness will have a reward like the one who did it.”
— Prophet Muhammad ﷺ