As a parent, how would you feel when the doctor says our child may not survive for long?

Since Ayra was just 2 months old, her body felt weak and her breathing was very rapid.

It turns out these were early symptoms of Ayra Sumayyah, a brave 3-year-old having 'Spinal Muscular Atrophy Type 1', a nerve disease that weakens the muscles of the body, affecting her breathing. At her tender age, Ayra relies on a BIPAP portable machine for essential breathing support and drinks milk through her nose, a lifeline crucial for her growth.

At just 6 months old, Ayra faced the harsh reality of SMA Type 1 – her movements were restricted, and she relied on a nasogastric tube for nutrition. As she turned 2, a crucial surgery granted her a peg tube, liberating her from the nasal tube. Unfortunately, a severe post-surgery infection led to ICU confinement and subsequent reliance on the BIPAP machine for breathing assistance.

With the aid of Risdiplam medication, Ayra can now sit and roll with assistance, showcasing her resilience. Despite receiving support such as cough assist and suction machines from the government hospital, her parents face financial strain; the father only runs a small business to support the family to survive.

As Ayra awaits a custom-made chair to enhance her mobility, we invite you to join us in supporting her journey. The battle against SMA is not just medical; it's a financial challenge. Ayra's family shoulders a hefty RM48,000 in bills, including ongoing medical expenses.

Your support can make a significant difference in Ayra's life – helping her access essential medical care, equipment, and easing the financial burden her family bears. Let's come together to empower Ayra Sumayyah on her path to a brighter, healthier future. Your kindness can be the beacon of hope she needs.

SHARE today and be a part of Ayra's story. Every single $ matters for her – a story of courage, resilience, and the collective strength of a caring community.